Thursday, November 16, 2006
I'll never dig out from under
Is there a rescue service for the hopelessly cluttered? Right now, every room in my house is a mess filled with things that I have no particular place for. Part of the problem is that I am in the midst of changing the designation of two rooms. The office is now a bedroom and the bedroom is turning into a studio and there is no office but there are still bookcases and files and a printer that have to go somewhere. A person who had that mysterious something something called stamina would finish such an undertaking in one weekend, but this is going to take me at least 2 more weekends to finish, what with needing to recruit man-in-a-can and fit everything into my busy whirlwind lifestyle. Then there's the problem that, even if everything was moved already, it isn't like I keep up with household chores. I go to work. I come home. I sit in the recliner and fall asleep. For financial reasons, it would be good if I had full-time employment. But I really have doubts that I could manage one for more than a few months before having a complete health breakdown. But then, if I had full-time employment, with all the benefits and income that would bring, maybe I could hire some help.
Wednesday, November 15, 2006
Born helpless, nude and unable to provide for himself
It's worth it to read Lore Sjöberg's columns at Wired, if only for his self-description at the foot of each article. Each bio is a play on the "overcoming handicap" trope. And usually the article preceding it is pretty damned funny, too.
Tuesday, November 14, 2006
Splints!
Got my Oval 8 finger splints today! I got a pack of size 8s and a pack of size 9s. The 8s fit my index and middle fingers pip joints great. The 9s fit my daughter's. How great! I think I will look into buying a smaller size for the dip joints, to correct the deviation which is returning. They're not so attractive as the silver ring splints, but I think they won't fall off so easily, nor do they seem likely to deform through daily use. So, yay!
Sunday, November 05, 2006
Nazis in white coats
Today's Scotsman has a horrific article about doctors calling for "active euthanasia" of infants with severe disabilities.
I wish I could say that I am shocked, but such outrages have been on the horizon for a long time. Of course, the advocates of active euthanasia say it is for the benefit of families and the children they wish to kill (killing is what "active euthanasia" means). Oppressors always say that they are hurting you only for your own good. Segregationists in the United States argued that Jim Crow was beneficial to black people. White expansionists argued that the reservations were good for American Indians. Misogynists argue that their restriction of women's rights equates to putting womankind on a pedestal. What do all these oppressors have in common with euthanasists? They are lying. They only one being done any good is themselves.
A big part of life is how we respond to the weaker among us. This is something that anyone, religious or non-religious, left or right, should be able to agree on. A culture in which the weak are prey to the strong is a culture where no one is safe. The very weakest must always be protected, for their sakes and the sake of all members of society.
The people who advocate euthanasia are not interested in the well-being of those they seek to kill, or that of the families of the disabled. If they were, they could address those concerns by extending themselves more. They could volunteer to take over bedside duties once a week. They could more cheerfully contribute financially. They could make sure that the homebound are not shut away from society.
Some will say, oh but these are doctors! They have already sacrificed sooooo much for everyone else and, of course, they are selfless. Please. Anyone who thinks doctors are paragons of humanity doesn't have to interact with them much. They are just as liable to be vicious bastards as that idiot who cut you off in traffic. The fact is that, to be a doctor, one has to subject oneself to some pretty dehumanizing experiences. All the good will that the 18 year old pre-med had is little defense against the animal vivisection, the corpse dissection, the resident work hours that act to dull the brain, the repeated exposure to trauma. Doctors sacrifice a great part of themselves in their journey to become doctors, no doubt. And that is why they can't be trusted with these kinds of decisions. This is why they must be sworn to do no harm and take no life. The stereotype of the doctor with delusions of godhood exists for good reason.
And then there are the "medical ethicists." Medical ethicists are like economists. They think in terms of unreality. Given a model situation, where all actors are interchangable, what would happen? Well, there are no real model situations. Models are models, and reality is messy. Reality says that some are strong and some are weak, and that the strong will destroy the weak unless there are severe social taboos against such actions. It isn't like we don't have strong historical precedent to show us what will happen when the dealers in unreality take control. Soon reality becomes a horror show that none can escape, where the only virtue is that of survival, where there are no friends, no loved ones, no personal values that are worth endangering oneself for.
Speaking as an atheist and advocate of the scientific method, I strongly denounce the pseudoscience of social Darwinism. Evolution explains the development of separate species. It is not a plan for social engineering. Those who use it that way are just making excuses for the sort of behavior that made Sparta such a delightful spot in the ancient Mediterranean, that made Hitler's Germany such a comfort zone, that has made every royal palace in history such bastions of security. That is, they are simply justifying the destruction of the weak by the strong.
SENIOR doctors are urging health professionals to consider permitting the euthanasia of seriously disabled newborn babies.
The proposal, by the Royal College of Obstetricians and Gynaecology, follows the increase in the number of such children surviving because of medical advances.
The college is arguing for "active euthanasia" to be considered for the overall good of parents, sparing them the emotional burden and financial hardship of bringing up the sickest babies.
I wish I could say that I am shocked, but such outrages have been on the horizon for a long time. Of course, the advocates of active euthanasia say it is for the benefit of families and the children they wish to kill (killing is what "active euthanasia" means). Oppressors always say that they are hurting you only for your own good. Segregationists in the United States argued that Jim Crow was beneficial to black people. White expansionists argued that the reservations were good for American Indians. Misogynists argue that their restriction of women's rights equates to putting womankind on a pedestal. What do all these oppressors have in common with euthanasists? They are lying. They only one being done any good is themselves.
A big part of life is how we respond to the weaker among us. This is something that anyone, religious or non-religious, left or right, should be able to agree on. A culture in which the weak are prey to the strong is a culture where no one is safe. The very weakest must always be protected, for their sakes and the sake of all members of society.
The people who advocate euthanasia are not interested in the well-being of those they seek to kill, or that of the families of the disabled. If they were, they could address those concerns by extending themselves more. They could volunteer to take over bedside duties once a week. They could more cheerfully contribute financially. They could make sure that the homebound are not shut away from society.
Some will say, oh but these are doctors! They have already sacrificed sooooo much for everyone else and, of course, they are selfless. Please. Anyone who thinks doctors are paragons of humanity doesn't have to interact with them much. They are just as liable to be vicious bastards as that idiot who cut you off in traffic. The fact is that, to be a doctor, one has to subject oneself to some pretty dehumanizing experiences. All the good will that the 18 year old pre-med had is little defense against the animal vivisection, the corpse dissection, the resident work hours that act to dull the brain, the repeated exposure to trauma. Doctors sacrifice a great part of themselves in their journey to become doctors, no doubt. And that is why they can't be trusted with these kinds of decisions. This is why they must be sworn to do no harm and take no life. The stereotype of the doctor with delusions of godhood exists for good reason.
And then there are the "medical ethicists." Medical ethicists are like economists. They think in terms of unreality. Given a model situation, where all actors are interchangable, what would happen? Well, there are no real model situations. Models are models, and reality is messy. Reality says that some are strong and some are weak, and that the strong will destroy the weak unless there are severe social taboos against such actions. It isn't like we don't have strong historical precedent to show us what will happen when the dealers in unreality take control. Soon reality becomes a horror show that none can escape, where the only virtue is that of survival, where there are no friends, no loved ones, no personal values that are worth endangering oneself for.
Speaking as an atheist and advocate of the scientific method, I strongly denounce the pseudoscience of social Darwinism. Evolution explains the development of separate species. It is not a plan for social engineering. Those who use it that way are just making excuses for the sort of behavior that made Sparta such a delightful spot in the ancient Mediterranean, that made Hitler's Germany such a comfort zone, that has made every royal palace in history such bastions of security. That is, they are simply justifying the destruction of the weak by the strong.
Saturday, November 04, 2006
Lost another ring splint
I'm very sad. Yet another ring splint has slipped from my hand while I was preoccupied. Out of 8 splints, I only have 3 left. At least the thumb splints, which I need most, can't fall off easily.
I am going to order oval-8 splints. They aren't near as pretty as the silver ring splints, but perhaps they will not fall off on the occassions that my fingers are not swollen. And if they do, they are much cheaper: Oval 8s at Sammons Preston.
I am going to order oval-8 splints. They aren't near as pretty as the silver ring splints, but perhaps they will not fall off on the occassions that my fingers are not swollen. And if they do, they are much cheaper: Oval 8s at Sammons Preston.
Labels:
danlos,
ehlers,
oval-8,
ring splints,
silver ring splints
oooh, look!
Blogger is finally accepting posting through Opera again. I can only wonder how long this will last.
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