I went this morning (well, now it's yesterday morning) to a dermatologist to have my back checked since Carapace had thought she spotted some problematic moles.
Once the dermatologist began his check, he noticed my ring splints and asked me what they were for. I told him, "to keep my thumbs on." Then I told him that my daughter has an official diagnosis of EDS, hypermobile. (My own official diagnosis is much more vague and scattered.) He's touching and pulling on my skin, and says "I was going to ask you about that." Then, "what other symptoms do you have?" I told him all my joints are generally lax and that some people say I have soft skin. And he said, "It is soft." Then asked me some more questions about Carapace and other family members.
Now, you may wonder, why I am impressed with this. After all, I am pretty obviously symptomatic, right? And I always give a complete medical history, both personal and family. But doctors hear what they want to hear, see what they want to see, and will tell you to shut up if they don't like you rocking their world with conditions they don't feel adequate to treat. They'd rather send you for endless pointless testing in the hopes that it will lead to something they know about than believe the evidence in front of them. But this doctor was different, and for the first time in a long time, I feel like I can trust a doctor, and my confidence in my own ability to assess what is going on with me is better because of that.
So. That ortho? He can either pull his head out and pay attention to what I say, or I can see a different one who listens in the first place.
(Not Quite) One of Our Own
12 hours ago